Patients

In developing a network for biological research for patients with Childhood Arthritis we strongly believe that input from and collaboration with patients and patient organizations is crucial. Patients, their parents, doctors and researchers all share the same common goal, namely that progress in basic science is translated in real tangible products for patients with childhood arthritis.

The first step will be providing JIA patients and parents with information about biological studies in JIA, and by adequately answering questions. We will make this information available and hope that this will provoke not only questions but also will promote real partnership between doctors, researchers and patients. This website is not meant to offer information on childhood arthritis.

For this other excellent resources are available, such as at the PRINTO website.


 

ENCA

ENCA is a network of parents support groups throughout Europe, which recognizes the need to support children and juveniles with rheumatic diseases and their families. ENCA is organized as an informal network between national JIA associations. ENCA is affiliated to PReS (Paediatric Rheumatology european Society) The objectives of ENCA are: to promote ... read more

JIA

De JIA Vereniging Nederland is the Dutch Organization for parents and patients with JIA.         Contact information: President: Marisa Giunta d’Albani Email: voorzitter@jeugdreumavereniging.nl Secretary: Irene Kuiper Email: secretaris@jeugdreumavereniging.nl ... read more
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